Sunday, November 23, 2008



Will my hair ever start growing back?!?! It still continues to fall out, mostly when I wash my hair. Maybe I'll just quit taking showers!!!!!!! Just kidding. Luckily my eyebrows are tattoo'd so I don't look like a total zombie. But I have to be somewhat insane anyways because I post these ragamuffin looking photos of myself online for the world to see. Hopefully people will look at the earlier photos when I had HAIR!!!! People at MD Anderson (my cancer center) tell me I should just shave off the rest of my hair like everyone else does but I'm just not sure I can do that. I keep hoping it'll quit falling out and I can salvage some of it at least. I wasn't suppose to lose this much of it!! I was only suppose to have partial hair loss as a result of my chemo drugs.
I went to see my oncologist last week. She said my hair should not still be falling out since I finished my chemo on 10/27 so she ran some blood test to try to figure out what is going on. I'm still tired all the time and am still afraid to drive. I haven't driven in months! I'm just not secure with my reaction time on the road and I'd hate to get into an accident and hurt someone. So right now my present goals are to get some hair back on my head, start driving to the grocery store and walk on the treadmill for 30 minutes a day. If I can accomplish that I'll be a happy camper.
Only three more days until Turkey day!! So looking forward to eating a leg and some sweet potatoes! Yummy!

Friday, November 21, 2008

Not much has been going on this month. My hair STILL continues to fall out. I have very little left. Anyone out there know how long the hair will fall out after chemo is finished? I'm ready for it to start growing back. I still continue to be very fatigued all day. I'm still afraid to drive because I'm so tired. I was in the hospital earlier this month for a few days because of fever and my white blood count was really low. They have me these WBC booster shots called Filgrastim injections and it worked. My WBC got up to 7 from 1.4. But i had a doctor appointment yesterday and it had fallen again so I'm not sure if the shots will become regular or not. My Sjogren's Syndrome causes me have chronic low white blood count to begin with so the chemo didn't help it much. I have to be so careful about germs and getting sick since my immune system is so retarded. It fights my good organs but it doesn't know to fight simple colds.

We had a cool front come in so the weather is lovely. Thanksgiving is next week and we plan to spend it with my mom, stepdad, stepaunt and my cousins. They live close by so it won't be too tiring for me. I get to see my cousin Brooke's adorable baby Paige and play with her. She is just too cute!

I tried making some gluten-free sugar cookies last week. They didn't turn out too good. Does anyone have a yummy recipe for gluten-free sugar cookies or gluen-free snickdoodles??? Having Celiac disease, especially around the holidays, really is a bummer. I am unable to eat all the wonderful baked desserts everyone makes.

If I don't write again before next week, I hope everyone has a wonderful, blessed Thanksgiving!!



my beautiful Harriet

my beautiful Harriet
This is Harriet, my sponsor child through Compassion International. She is 9 and lives in Uganda, Africa. I've been sponsoring her for about 2 years now. She just sent me this photo and said she bought the shoes and stockings in the photo with money I sent her. Please pray for her and her family.